Wednesday, December 28, 2011
Saturday, December 17, 2011
Again in the hospital
Fede was admimitted again to the hospital on Thursday evening. He was at his doctors office for a quick check and he started getting episodes of vomiting, nausea and pain in his liver. His doctor decided to admit him right away. He was scheduled to have a procedure the next day anyways so his doctor wanted him to be monitored. When he got to the hospital he had another episode and went through the worst experience so far. They tried to stabilize him and help relieve his pain. After awhile he was stable and able to rest for the night.
He had another endoscopy Friday afternoon to remove the temporary stent that was placed a few weeks ago and to look further into his bile ducts to once again try to find the cause of this liver not draining. His doctor found that a tumor in the liver was pressing on the bile duct and squeezing it off. The doctor thinks that this is the cause of the blockage. He cleaned out that area and placed a metal stent there to hopefully help it drain. The other arm of the duct might also be blocked and after they monitor him this week, he might need another stent put into the other part of the bile duct. The good news is that we finally have an answer to his problem and that they know that the tumor was causing the problem. When they didn't find anything else wrong the last time he was in the hospital, his oncologist had to assume that is was the cancer and wanted to start treating it right away. So now that is seems that was the case, he is already on treatment and hopefully we will start seeing results soon. Best case senario would be that the bile is draining now because of the stent. His bilirubin was extremely high but his doctor said his liver is still functioning.
He had another endoscopy Friday afternoon to remove the temporary stent that was placed a few weeks ago and to look further into his bile ducts to once again try to find the cause of this liver not draining. His doctor found that a tumor in the liver was pressing on the bile duct and squeezing it off. The doctor thinks that this is the cause of the blockage. He cleaned out that area and placed a metal stent there to hopefully help it drain. The other arm of the duct might also be blocked and after they monitor him this week, he might need another stent put into the other part of the bile duct. The good news is that we finally have an answer to his problem and that they know that the tumor was causing the problem. When they didn't find anything else wrong the last time he was in the hospital, his oncologist had to assume that is was the cancer and wanted to start treating it right away. So now that is seems that was the case, he is already on treatment and hopefully we will start seeing results soon. Best case senario would be that the bile is draining now because of the stent. His bilirubin was extremely high but his doctor said his liver is still functioning.
Tuesday, December 13, 2011
Never loose Hope. Nunca perder las Esperanzas
On Monday of last week I was released from the hospital. They have preformed all the diagnostic tests possible to help determine the cause of my pain and the reason my liver is not functioning well. They have revived me with IV nutrition TPN. They studied my blood results and prepared a solution especially designed for me to give me all the vitamins and minerals that I was lacking. Even lipids (fat).
English
I arrived at the hospital in a serious situation. I could not eat and could not handle the pain in my back and stomach any longer. I had lost a lot of weight in a short time.
After all the possible tests were done looking at my digestive track all the results came back negative. Everything seemed to be fine. They could not find anything wrong and assumed that it could be the cancer blocking the ducts in the liver. The CT scans showed that the tumors in my liver were stable but that the cancer cells are so small that they could have grown into the ducts and was possibly not detectable on the scans. My liver was still functioning but it was not draining. And this was causing the strong pains because the ducts were blocked and the bilirubin was backing up in my system and causing all kinds of terrible symptoms. Hard to imagine but the pain was intolerable and radiated all over my upper body from my chest to my back.
Many days passed without knowing what was causing all of this. The doctors at Hoag Hospital worked around the clock on my case coming throughout the day to visit me and give me the latest results of the tests still not knowing what was the cause. At the same time the bilirubin in my body was going up everyday. When I entered the hospital it was at 4, normal is under 1. By the end of my stay in the hospital it was up to 17. Finally last Friday, December 2nd my doctors came and gave me the news that it seemed to be the cancer causing the problem and that I needed to start chemo as soon as possible to kill these cells and to open these ducts that carry the bilirubin from the liver to the intestines. Sunday I received the first infusion of this chemo that has 3 new drugs that I have never had before. I am now home and it feels like the recuperation will be very slow. I feel that my body is very tired and fatigued all day. I can walk but very slowly. Anyways I try everyday to go on a short walk.
It was very difficult to be in the hospital especially the first week when they gave me the IV nutrition and fluids. And not knowing what was wrong with me. I had to have a lot of patience and to be honest I was very worried that the problem was with my liver and that it wasn't functioning well. It was very serious what was happening and If they couldn't find an answer there weren't many options left. And every time that this fear passed through my head I would turn to Him, who takes away my fears, doubts, and makes me feel peace again and strengthens my hope, God.
This new chemo regimen that I have never had before, is the only solution they have now to help my liver.
Today I had more chemotheraphy and this coming up Friday I am having another endoscopy to remove the stemt that was placed in the main duct that goes from the liver to the intestine.
As soon as I have some news I will share it with you.
God Exists
Federico
SPANISH
Hacen unos 9 días fue mi ultima día de internacion en el Hospital. Fueron casi 2 semanas ahí donde me revivieron con alimentacion por zonda donde me infiltraban con todo
lo que se veia que me faltaba que me faltaba en la sangre como ser minerales y vitaminas y otras sustancias.
Acá llegue en un estado de emergencia donde ya no podía comer mas y no soportaba los dolores en la espalda y en el pecho. Había perdido mucho peso en muy poco días.
Después de que me hicieran todos los examenes médicos que existen para todo el sistema digestivo y que todos dieran negativos, es decir que todos salieron bien.
No se encontró nada malo, los medicos dedujeron que lo que me estaba pasando era que el cancer se había ido a otras partes del hígado pero no se puedo ver nada en los estudios por se tan pequeñas estas células cancerigenas pero suficientemente grandes para bloquear el pasaje de la bilis a el conducto principal que la transporta hacia el intestino donde se comienza a producir la digestión. Y esto me ocasionaba los dolores fortísimos que sentía porque al cerrarse muchos de los conductos chiquitos que drenan la bilis del hígado, se hinchan y esto aunque me cueste creerlo, producen un dolor que es inaguantable que se esparce hacia otras zonas del pecho y de la espalda.
Fueron varios días sin saber que es lo que estaba causando todo esto. Los doctores de este Hospital no pararon de trabajar en mi caso, venían todo el tiempo a informarme como iban todos los estudios y que se había visto y siempre escuchaba que no sabían todavía que era. A la vez la bilirrubina en mi cuerpo iba aumentando todo los días y sigue aumentando.
Finalmente el viernes pasado que fue el 2 de Diciembre, me vinieron a dar la confirmación que era aumento del cancer en el hígado la causa de este problema y que tenia que empezar con quimioterapia lo antes posible para matar esas células y así poder abrir esos conductos que transportan bilis hacia el intestino.
El Domingo me dieron la primer quimioterapia compuesta por 3 drogas nuevas que nunca me las habían dado antes.
Ahora ya en casa siento que la recuperación va muy despacio. Siento mi cuerpo muy cansado todo el día, puedo caminar pero muy lento, igual lo hago y trato de hacerlo todos los días y lo mas que pueda. MI seguro medico me puedo mandar un fisio terapeuta y ya muy pronto y no tengo que pagar nada, me lo cubre totalmente mi seguro.
Fueron días muy dificiles en el Hospital principalmente la primer semana, cuando me alimentaron con fluidos nada mas y por vena. y no saber hasta mas o menos el octavo día, que era lo que tenia, que es lo que estaba causando todo esto. Tuve que tener mucha paciencia y no lo voy a ocultar, me vino miedo varias veces por saber que el problema estaba en el hígado y no se encontraba funcionando bien y que era muy serio lo que me estaría ocurriendo y que si no me podían solucionar esto entonces podría pasar lo peor. Y cada vez que esto me pasaba por mi cabeza recurrí siempre a El, el que me ayuda en los momentos dificiles a discipar de mi cuerpo el miedo, las dudas, y me da paz y fortalece aun mas mis esperanzas, Dios.
Esta quimioterapia con 3 drogas que nunca antes me las habían dado, es el único método que tienen por ahora para solucionar este problema en mi hígado.
Ni bien tenga alguna notica nueva de todo esto, se los voy a comunicar.
Dios Existe
Federico
English
I arrived at the hospital in a serious situation. I could not eat and could not handle the pain in my back and stomach any longer. I had lost a lot of weight in a short time.
After all the possible tests were done looking at my digestive track all the results came back negative. Everything seemed to be fine. They could not find anything wrong and assumed that it could be the cancer blocking the ducts in the liver. The CT scans showed that the tumors in my liver were stable but that the cancer cells are so small that they could have grown into the ducts and was possibly not detectable on the scans. My liver was still functioning but it was not draining. And this was causing the strong pains because the ducts were blocked and the bilirubin was backing up in my system and causing all kinds of terrible symptoms. Hard to imagine but the pain was intolerable and radiated all over my upper body from my chest to my back.
Many days passed without knowing what was causing all of this. The doctors at Hoag Hospital worked around the clock on my case coming throughout the day to visit me and give me the latest results of the tests still not knowing what was the cause. At the same time the bilirubin in my body was going up everyday. When I entered the hospital it was at 4, normal is under 1. By the end of my stay in the hospital it was up to 17. Finally last Friday, December 2nd my doctors came and gave me the news that it seemed to be the cancer causing the problem and that I needed to start chemo as soon as possible to kill these cells and to open these ducts that carry the bilirubin from the liver to the intestines. Sunday I received the first infusion of this chemo that has 3 new drugs that I have never had before. I am now home and it feels like the recuperation will be very slow. I feel that my body is very tired and fatigued all day. I can walk but very slowly. Anyways I try everyday to go on a short walk.
It was very difficult to be in the hospital especially the first week when they gave me the IV nutrition and fluids. And not knowing what was wrong with me. I had to have a lot of patience and to be honest I was very worried that the problem was with my liver and that it wasn't functioning well. It was very serious what was happening and If they couldn't find an answer there weren't many options left. And every time that this fear passed through my head I would turn to Him, who takes away my fears, doubts, and makes me feel peace again and strengthens my hope, God.
This new chemo regimen that I have never had before, is the only solution they have now to help my liver.
Today I had more chemotheraphy and this coming up Friday I am having another endoscopy to remove the stemt that was placed in the main duct that goes from the liver to the intestine.
As soon as I have some news I will share it with you.
God Exists
Federico
SPANISH
Hacen unos 9 días fue mi ultima día de internacion en el Hospital. Fueron casi 2 semanas ahí donde me revivieron con alimentacion por zonda donde me infiltraban con todo
lo que se veia que me faltaba que me faltaba en la sangre como ser minerales y vitaminas y otras sustancias.
Acá llegue en un estado de emergencia donde ya no podía comer mas y no soportaba los dolores en la espalda y en el pecho. Había perdido mucho peso en muy poco días.
Después de que me hicieran todos los examenes médicos que existen para todo el sistema digestivo y que todos dieran negativos, es decir que todos salieron bien.
No se encontró nada malo, los medicos dedujeron que lo que me estaba pasando era que el cancer se había ido a otras partes del hígado pero no se puedo ver nada en los estudios por se tan pequeñas estas células cancerigenas pero suficientemente grandes para bloquear el pasaje de la bilis a el conducto principal que la transporta hacia el intestino donde se comienza a producir la digestión. Y esto me ocasionaba los dolores fortísimos que sentía porque al cerrarse muchos de los conductos chiquitos que drenan la bilis del hígado, se hinchan y esto aunque me cueste creerlo, producen un dolor que es inaguantable que se esparce hacia otras zonas del pecho y de la espalda.
Fueron varios días sin saber que es lo que estaba causando todo esto. Los doctores de este Hospital no pararon de trabajar en mi caso, venían todo el tiempo a informarme como iban todos los estudios y que se había visto y siempre escuchaba que no sabían todavía que era. A la vez la bilirrubina en mi cuerpo iba aumentando todo los días y sigue aumentando.
Finalmente el viernes pasado que fue el 2 de Diciembre, me vinieron a dar la confirmación que era aumento del cancer en el hígado la causa de este problema y que tenia que empezar con quimioterapia lo antes posible para matar esas células y así poder abrir esos conductos que transportan bilis hacia el intestino.
El Domingo me dieron la primer quimioterapia compuesta por 3 drogas nuevas que nunca me las habían dado antes.
Ahora ya en casa siento que la recuperación va muy despacio. Siento mi cuerpo muy cansado todo el día, puedo caminar pero muy lento, igual lo hago y trato de hacerlo todos los días y lo mas que pueda. MI seguro medico me puedo mandar un fisio terapeuta y ya muy pronto y no tengo que pagar nada, me lo cubre totalmente mi seguro.
Fueron días muy dificiles en el Hospital principalmente la primer semana, cuando me alimentaron con fluidos nada mas y por vena. y no saber hasta mas o menos el octavo día, que era lo que tenia, que es lo que estaba causando todo esto. Tuve que tener mucha paciencia y no lo voy a ocultar, me vino miedo varias veces por saber que el problema estaba en el hígado y no se encontraba funcionando bien y que era muy serio lo que me estaría ocurriendo y que si no me podían solucionar esto entonces podría pasar lo peor. Y cada vez que esto me pasaba por mi cabeza recurrí siempre a El, el que me ayuda en los momentos dificiles a discipar de mi cuerpo el miedo, las dudas, y me da paz y fortalece aun mas mis esperanzas, Dios.
Esta quimioterapia con 3 drogas que nunca antes me las habían dado, es el único método que tienen por ahora para solucionar este problema en mi hígado.
Ni bien tenga alguna notica nueva de todo esto, se los voy a comunicar.
Dios Existe
Federico
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